Does anyone else fall down in a darkened room?

janrae

I have been diagnosed with Primary Autonomic failure or Multiple system Atrophy which is all neurological but with the research that I have done and the questions that I have asked of my Neurologists etc,no one seems to ne able to explain to me why these things are happening to me. Even a blind person can stand up in the dark. Any ideas???Or suggestions??

Asked 4 months agoStatus: Open

Tagged as: neurological..., autonomic neuropathy

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Answers (2) to: " Does anyone else fall down in a darkened room?"

Catherin

You are having a weak nervous control over your body. Automatic function of the nerve is not working well and this is the reason you are having weak balance and control. A blind person does not have weak nerves and his sense organs do functions well. They can control themselves. They do have the balance maintained. You require treatment and any medicines and counseling, which has been provided by the doctor must be taken seriously. This will help you in having good coordination and balance.
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janrae

Hi and thankyou Catherine for making some sense out of my question I do not have any balance and can only walk 50metres and fall. Do distances with a wheelchair etc.
Have done all the Physiotherapy etc for balance and co-ordination.
I am on all the meds the docs can offer and the help they give but they are very limited as they say it is very rare and not well known.
It seems to be something that even the top specialists have difficlty explaining to me as the patient and have to be monitered closely by my g.p. for any changes. Have done a lot to keep myself mobile for years. So true with what you said about the blind. Wonder why my Neuro-opthamologist couldn't explain that? Thanks again,cheers,
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