Living With MS Fatigue
Fatigue is not simply feeling tired at the end of a long day; it is a persistent state of exhaustion that often persists even after rest or sleep. It is a common and debilitating symptom of multiple sclerosis (MS), as many individuals with MS can attest to. There are times when the fatigue is so severe that it becomes difficult to get out of bed. This sentiment is echoed by others within our MS Facebook community, with one member sharing their experience of sleeping for three days with only short breaks and feeling completely drained even by the act of eating.
Multiple Sclerosis Symptom Video: MS Fatigue Management
There are various causes of MS fatigue. Inflammation resulting from the immune system's attack on nerves is one factor, as is the struggle of the nervous system to adapt to damage of the protective myelin sheath. MS-related sleep disturbances, muscle weakness, urinary problems, pain, anxiety, and depression can also contribute to fatigue. Additionally, fatigue can be influenced by environmental factors and behaviors. Personally, I have observed that excessive warmth renders me unable to sit upright, while large meals make me sleepy. Overexertion can also result in prolonged periods of fatigue. Avoiding triggers can help prevent these episodes.
Fatigue is often referred to as the invisible aspect of MS, as it is not easily discernible by others. Consequently, family and friends may struggle to understand our limitations and interpret it as mere excuses. Therefore, the requests for activities may diminish or cease altogether. Personally, I have noticed that I become tired after eating due to thermogenesis, a process in which the body generates heat after a meal. As someone who experiences worsened symptoms with increased warmth, this phenomenon can greatly affect my energy levels. By opting for smaller meals, I have been able to mitigate this issue. Protein, in particular, raises body temperature more than other foods, so I consciously limit my intake of it.
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High external temperatures also induce fatigue in individuals with MS, myself included. During warm days, I avoid direct sun exposure and carry a portable fan for outings. Staying hydrated is essential as both warmth and dehydration can have severe consequences. In my personal experience, mental fatigue can be just as hazardous as physical exhaustion. When warm or tired, I am more prone to misjudgments and make careless mistakes that I would not otherwise make. Attempting to reach high shelves or carrying heavy objects become unnecessarily dangerous tasks when fatigued. Therefore, I have learned to postpone making major life decisions until I am well-rested.
Like many others with MS, I have good and bad days. On good days, I am tempted to make up for the activities I am unable to do on bad days, resulting in extended periods of fatigue. Although it may be acceptable for special occasions, it is crucial to reserve energy on a regular basis. Physical therapists stress the importance of maintaining movement in the body as remaining sedentary throughout the day can contribute to fatigue. While it may be challenging, incorporating light exercise, such as stretching and strengthening routines, has made it easier for me to move.
There are medications available to address fatigue, with caffeine being the easiest and most accessible option. A cup of coffee or tea can provide a temporary boost in energy. I personally find green tea beneficial. Prescription medications like Provigil have also proven to be effective for many individuals.
One positive aspect of fatigue is that it does not cause physical pain. However, it can be mentally debilitating, preventing us from engaging in activities that we desire or need to do. It is important to seek assistance from healthcare professionals or therapists and consider medications to manage depression or anxiety if MS-related fatigue begins to affect your mental well-being. It is also important to prioritize self-care by engaging in relaxation techniques such as meditation, prayer, or breathing exercises. Tension and stress have a draining effect on our energy levels, and maintaining an overall sense of peace can reduce fatigue. Additionally, it is worth noting that fatigue typically subsides over time. Personally, as long as I manage to stay cool, it no longer poses a significant inconvenience, and I am immensely grateful for that.
To connect with others living with multiple sclerosis, I encourage you to join our MS Facebook Support Group.
