Lifestyle Changes Helped Me Adjust to a Narcolepsy Diagnosis
On a rainy Thursday morning, I exited the doctor's office after my sleep study follow-up appointment. The gloomy weather mirrored my somber mood as I had just received a diagnosis of narcolepsy. Clutching packets of papers and pamphlets on treatment options, I walked alongside my mother in silence, both of us struggling to comprehend the situation. A peculiar sensation washed over me – relief from finally having answers, yet a feeling of life hitting me unexpectedly. It resembled the frustration of missing puzzle pieces even after finding one that fits perfectly.
Narcolepsy, Causes, Signs and Symptoms, Diagnosis and Treatment.
As a naturally positive person, I questioned how I would navigate self-care while striving for academic success. However, I soon realized that neglecting my well-being would be counterproductive. Getting into the car, my mom and I began delving into the lifestyle changes outlined in the packet. It quickly became apparent that adapting was crucial with a new diagnosis of narcolepsy. The pamphlets and information could only provide guidance, as finding the right lifestyle adjustments was akin to a complex trial and error game, similar to medication. Different changes impact individuals differently. Thankfully, I discovered a few helpful strategies to better manage my symptoms.
Maintaining consistent daytime and nighttime routines has proven beneficial. Listening to my body and allowing myself to nap became a priority, contradicting those who view napping as a luxury. Resisting sleepiness only exacerbates the feeling of exhaustion. Additionally, I found that consuming lighter meals, reducing carbohydrates and sugar, staying hydrated, and engaging in regular exercise heightened my daytime alertness. Although adjusting to these modifications may be challenging, establishing a routine facilitates consistency.
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While these practices seem basic for maintaining a healthy lifestyle, they aid in avoiding triggers that intensify sleepiness. It can also be advantageous to have someone hold you accountable for adhering to these practices. Surprisingly, many people express surprise when I mention my struggle with nighttime sleeping. Contrary to popular belief, individuals with narcolepsy do not sleep excessively; instead, our sleepiness is often misaligned. This means that rampant daytime sleepiness coexists with nocturnal wakefulness.
Developing a solid nighttime routine is equally crucial to optimize quality sleep. Practicing good sleep hygiene is essential. I discovered that my sleep environment significantly impacts the quality of my rest. A cool and clean room, a weighted blanket, and a strict bedtime aid in creating an optimal sleep environment. To make waking up easier, I rely on a pillow alarm that vibrates under my head, as I have difficulty hearing other alarms. Furthermore, preparing lunch and selecting an outfit for the next day simplifies mornings. With limited energy, it is vital to employ it wisely. Adjusting my mindset has greatly influenced my energy levels and mood, reducing the likelihood of stress triggering sleepiness. I make sure to engage in activities I enjoy and eliminate negativity from my life. Exploring new hobbies and learning to say no without apology have proven beneficial.
Whenever I feel trapped, I resort to an acronym I devised called SPAR: stillness, prioritize, adjust, and refocus. Embracing moments of stillness, prioritizing my health, accepting circumstances, and redirecting my energy to what truly matters has been transformative. Although I may not be able to change my situation, I can choose to make the most of it.